New Illinois newborn screening inspired by suburban family yields early success
- Posted on September 22, 2026
- By Bing News
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- 1 min read
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New Illinois newborn screening inspired by suburban family yields early success
As of 2026, all newborns in Illinois are now being screened for GAMT, Guanidinoacetate methyltransferase deficiency. The rare, genetic condition affects the body’s ability to make creatine, which can cause severe neurological and behavioral problems and affect muscle development. Siblings Benny and Celia Robinson were diagnosed at age five and one in 2009. “I think one of the most powerful tools has been seeing what early treatment looks like....
