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As a child she nearly lost her life to a rare condition. Today, at 26, she is defying the odds

  • Posted on September 25, 2026
  • By CNN
  • 7 Views
  • 1 min read
In brief

Olivia DeKold's remarkable journey showcases resilience and determination in the face of a life-threatening rare medical condition diagnosed during childhood. Despite living with medical equipment dependency, she has transformed her challenges into inspiration, becoming an advocate for rare disease awareness. Her story demonstrates how individuals can maintain hope, embrace life's meaningful moments, and inspire others while managing complex health circumstances. At 26, Olivia continues to break barriers and redefine what's possible.

Summary auto-generated by AI from the original publisher's content. Editorial standards.

As a child she nearly lost her life to a rare condition. Today, at 26, she is defying the odds
As a child she nearly lost her life to a rare condition. Today, at 26, she is defying the odds

Olivia DeKold was born with a rare disorder that keeps her tethered to tubes. She holds tightly to life’s gifts as if her life depends on it. She believes it does.
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Author
CNN

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